tag:blogger.com,1999:blog-3953725247173025494.post5139478302305959584..comments2023-09-26T15:49:32.401+01:00Comments on Hazel's Blog - The Road To Transplant.: Ray Of LightAnonymoushttp://www.blogger.com/profile/10339616352682974597noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3953725247173025494.post-12918104941155671512011-06-04T10:52:45.924+01:002011-06-04T10:52:45.924+01:00Thanks John, I'm hopeful that there will be no...Thanks John, I'm hopeful that there will be no more hiccups. Wouldn't having PH be so much less stressful without PCT's?Anonymoushttps://www.blogger.com/profile/10339616352682974597noreply@blogger.comtag:blogger.com,1999:blog-3953725247173025494.post-31721868936232013052011-06-03T22:39:10.508+01:002011-06-03T22:39:10.508+01:00So pleased to hear that you have got PCT funding.
...So pleased to hear that you have got PCT funding.<br /><br />I know only too well that the waiting for an answer can be very stressful. Five years ago I had to wait 6 weeks for an answer on the funding of Sildenafil.<br /><br />We finally got approval and had to attend the PH centre some 200 miles away in mid-December to be started on the treatment.<br /><br />On admission to the ward they took my BP among other things, and decided it was below the lower limit for starting Sildenafil treatment!<br /><br />The only other option was the more expensive Bosentan, for which PCT approval would once more be required.<br />Fortunately my consultant was very good and spent the next 6 hours making calls to the PCT until she was able to speak to the exec officer who had sufficient signing power to authorise the change.<br /><br />Hope your visit to Brompton goes more smoothly than that.<br /><br />Best wishes<br />JohnJAldredhttps://www.blogger.com/profile/11538866840560337016noreply@blogger.com